My first time out

A highlight of the year. 

I went out for the first time in my wheelchair, and I went out for the first time in over four years to somewhere other than a hospital. Which even that has, apart from two outpatient appointments this year, all been emergency admissions. 

I cannot begin to explain how huge this is. And many won’t understand how 5 minutes up the road to a postbox and back can be so huge. But to the girl two or three years ago and her absolute physical lowest with very serve ME this is everything. To me right now who has survived so much more than I can even comprehend, this is everything. I have hoped for years things like this would happen again. It’s indescribable to explain the feeling of these things coming true. 

Right now I feel so incredibly lucky. The negatives of the situation that others may think, in a wheelchair etc, and the impending PEM, don’t touch on my happiness. And that is something I wish for more of. Pure joy and magic. 

Though I guess I’m immediately faced with the inaccessibility of the world since I could get near the post box but not to actually put the letter in myself!

I am holding everyone in my thoughts unable to do this, I hope this day comes for you 💗