I started sharing my story in June 2021 on my Instagram. I decided to take a chance despite my many fears and share a very personal aspect of my life that I thought couldn’t and shouldn’t be spoken of. And I wanted to say thank you. Thank you for making that one of the best decisions I have ever made.
I didn’t know the community I would be entering. Didn’t know I would find true friends and support like no other.
I wanted to share some words I wrote for my English speaking.
“I have found a community in a corner of the Internet I didn’t know existed, the chronic illness and disability corner. Its not just interacting with each others posts but I’ve found friends in those I’ve never met, whilst I lost the ones I had known for years. People who understand and know what I’m going through, who can give personal advice and tips. I get to chat about my day with people and not feel overwhelming grief that I can’t do the same things I used to, because these people have similar days and they know how much I want to do things, and know how much it means when I can. People who can celebrate my wins, because in the grand scheme of life they are considered small, but to me they are so important. People who I’ve never met but know me deeper than so many others. People who are now true friends, and from being so isolated and feeling so lonely I found comfort.
I can share my thoughts and start conversations. Important ones about experiences, stigma and more. Topics like medical gaslighting, the bias women face in healthcare, grief of our lives and ridiculous comments other people might make.
I have been able to feel fulfilled. I have been able to feel I am doing something worthwhile, that I have a purpose and I give something to the world (or a small virtual corner of it). It is not what I thought I would be doing, but it still feels important. And every message I receive from someone touched by my words, where I have been able to express something they couldn’t, or show them they aren’t alone, means the world. Because it does mean something I’m doing matters”.
So truly, from the bottom of my heart, thank you.
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