For those that don’t know, I’m Katie, I’m 20 and I have had ME since I was 13. I became bedbound with ME, losing the ability to walk, stand or even sit upright at the age of 15, which I have still not regained.
I have really struggled to decide what to write this year or what topic to choose. The sad reality is that there are just too many areas of ME that need awareness. It’s overwhelming. As is the fact it often feels like we’re talking to a void. We raise awareness and people already aware are the ones that see.
Despite that, I want to talk about it. And I don't want to choose one area when there are so many desperate ones. So throughout this month, I’m going to a series of posts: the story of M.E.—different chapters of my journey. I hope to share some of the various areas of ME that need attention.
This is honestly quite an ambitious plan from someone still bedbound with ME as I hbut I hope I can share at least some of what I want to (though I have a very long list of ideas that I want to share all of)!
I hope you stick around to see what I have to say.
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