Myalgic Encephalomyelitis, the name they give,
An illness so misunderstood, its hard to live
It turns out invisible,
Means dismissible
The cause unknown,
We are left alone
Symptoms unseen,
My life robbed of all that could’ve been
M.E. the illness i cannot prove,
My limbs are weak, I cannot move
The waves drag me under,
The symptoms hit like thunder
Then the concrete feeling sets in,
My world turns dim
My body broken, my sprit drained
A life half lived, forever restrained
Pain and exhaustion beyond compare,
A struggle to breathe, a gasping for air
I lay in bed for days and weeks,
Not able to find the energy my body seeks,
Weighed down, my head throbs and my eyes burn,
My body aches, my muscles quake, but met with unconcern
In silence and stillness I exist,
Living in a body that always resists
Now trapped inside the four walls of this room,
I have little life, my body consumed.
Days blur into weeks, weeks into years,
A life thats been stolen, a future full of fears.
This is the life of M.E.
A chronic illness thats hard to see
Waiting for someone to lift this heavy veil,
To set me free from my body’s jail
For now I lay here day after day,
Hoping for change, in some way
But funding is missing,
It seems no one is listening.
We fight to get our voices heard,
Not listened to, but not deterred.
You never see,
You ignore M.E.
Beautiful...
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